The transgender, gender fluid, nonbinary, and LGBTQ+IAAP (Lesbian, Gay, Bisexual, Transgender, Queer/Questioning, Intersex, Asexual, Allies, and Pansexual) community can face unique challenges when dealing with epilepsy. For individuals in this community, managing epilepsy while also navigating gender identity and sexual orientation can be complex.

Added support and understanding are necessary as LGBTQ+IAAP individuals may not only be facing concerns regarding their epilepsy and seizures but may also encounter additional stressors (e.g., stigma and discrimination due to their sexual identity), which can impact their overall well-being.

Medications used to manage epilepsy could potentially interact with hormone therapy or other medications related to gender-affirming care. Open communication between patients and healthcare providers is essential to create a treatment plan that considers this.

Mental health matters. Epilepsy and the challenges faced by the LGBTQ+IAAP community can impact mental well-being. Seeking support from mental health professionals who work with patients from the LGBTQ+IAAP community can provide a safe space to discuss concerns. These counselors should also be familiar with mental health issues that relate to life with epilepsy and seizures to provide comprehensive care.

Support groups specifically tailored to LGBTQ+IAAP individuals with epilepsy can also be an important resource.

Additional resources are: The Trevor Project (https://www.thetrevorproject.org/get-help/) and the Epilepsy Foundation’s epilepsy blog (https://www.epilepsy.com/stories/ejourney) provides a safe place where LGBTQ+ people can share their epilepsy journey.